Sunday, March 31, 2013

Autism awareness day.. To Facebook or not to Facebook?

Not sure what day we are at with Grant now, but he has been seen by every specialist on his IFSP except the nutritionist, and that should be soon. Still good and bad days oth noticing his behaviors, lack of eye contact, etc, but mostly good. I haven't made a general announcement on FB yet - actually I thought this blog was connected to my FB page but so far no one has noticed it, which keeps it easy for me to write feelings without repercussion, anyway. It's raining. Nice sound on the roof, and pleasant to sleep to. This Easter weekend was fantastic-visits from Scott's brother's family were just what I needed to pull me gently out of a slump. They arrived with a homemade piƱata, 84 Easter eggs filled with candy, and ideas to make Easter fun. This promises to be a good week; they've never been to new England and want to play, play, play. Normally that would be great, but this was supposed to be the first week that grant got his full 20 hours of services, and i cancelled his first 4 tomorrow because evyone else thought we should take the babies with us to NYC (and we didnt have an evening babysitter). Felt pretty wrenching to text the SLP at 9pm the night before and ask if she. I'd possibly squeeze us in later in the week. And then canceling on the babysitter as well- she was even coming to babysit on her 18th birthday tomorrow. The reality of 20 advice hours a week is beginning to set in. I still don't feel like I know exactly what things we are specifically training Grant to do, but I'm trying to make time to read the Denver model book and get a feel for the hierarchy of skills. Guilt, guilt, and more guilt. Someone told me early on that they "didn't feel a need to publish their lives on FB", I guess encouraging me not to specifically talk about Grant's diagnosis. But I want to move awareness for Autism forward as much as I can. Autism awareness day is April 2, tomorrow.

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